The following resources may be helpful when developing educational and outreach materials regarding Clinical Trials Awareness Month. Categories include: Michigan Cancer Consortium Resources; Clinical Trials Resources in Michigan; Federal Government Resources; and Organizational Resources.

Michigan Cancer Consortium Resources

• The Cancer Burden in Michigan: Selected Statistics (revised December 2006)
  This revised report was developed by the Michigan Public Health Institute in support of the Michigan Cancer Consortium Initiative. The report describes the cancer burden in Michigan in terms morbidity and mortality, and the human and financial cost associated with cancer to the extent to which data are available at this time. Five cancer sites are presented: breast, cervical, colorectal, lung, and prostate.

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• Michigan Working Group to Improve Cancer Outcomes
  www.michigancancer.org/WhatWeDo/MichiganWorking
  GroupImproveCancerOutcomes.cfm

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Federal Government Resources

• ClinicalTrials.gov
  www.clinicaltrials.gov
  ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.

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• National Cancer Institute (NCI) — Types of Cancer www.cancer.gov/cancer_information/cancer_type
  Here you can find information about detection, symptoms, diagnosis, and treatment of many types of cancer.

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• NCI — Clinical Trials
  www.cancer.gov/clinical_trials
  The clinical trials home page is the gateway to a variety of information from the NCI. Topics include finding clinical trials, recent developments, clinical trial results, educational resources, and more.

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• NCI — How to Find a Cancer Treatment Trial
  www.cancer.gov/clinicaltrials/finding/treatment-trial-guide
  This guide will help you to: gather the information you need to begin your search for a clinical trial; identify sources of clinical trial listings; learn about clinical trials that may be of benefit to you; and ask questions that will help you decide whether or not to participate in a particular trial. It is not intended to provide medical advice. You, your health care team, and your loved ones are in the best position to decide whether a clinical trial is right for you.

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• NCI Clinical Trials Search Page
  www.cancer.gov/search/clinicaltrials
  This NCI feature allows users to find cancer clinical trials by searching the NCI PDQ database of trials. Users can choose from four search criteria: 1) type of cancer; 2) stage/subtype of cancer; 3) type of trial; and 4) location of trial.

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• NCI Fact Sheet — "11 Things to Know About Cancer Prevention Trials"
  www.cancer.gov/clinical_trials/doc.aspx?viewid=
  A59C6D92-1981-4562-9FF7-2AE65B0C1BB0
  Here, you can access "11 Things to Know About Cancer Prevention Trials," an electronic fact sheet with links to additional information.

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• NCI Fact Sheet — "10 Things to Know About Cancer Treatment Trials"
  www.cancer.gov/clinical_trials/doc.aspx?viewid=
  E0EC2483-68C7-42A9-BB17-F3B9F71010B1
  Here, you can access "10 Things to Know About Cancer Treatment Trials," an electronic fact sheet with links to additional information.

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• NCI Publications Locator
  https://cissecure.nci.nih.gov/ncipubs
  By choosing the "Clinical Trials" option at this site, you will see the clinical trial-related NCI publications that are available, with a description of each and the option to view the publication online. The site includes publications for health professionals and patients, all of which can be ordered free online.

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• NCI Research Resources
  http://resresources.nci.nih.gov
  The NCI Research Resources web site is integral to NCI’s commitment to provide basic, clinical and epidemiological researchers with tools and resources to facilitate cancer research. These NCI-developed products and services are available without extensive negotiations or intellectual property issues. The NCI Research Resources web site was developed to better enable access to these resources and to promote their use by members of the scientific community.

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• NCI — Understanding Clinical Cancer Trials
  www.cancer.gov/clinical_trials/understanding
  At this site, you can find answers to common questions about clinical trials. Topics include: What is a clinical trial?; Should I take part in a clinical trial?; How do I take part in a clinical trial?; and How is a clinical trial planned and carried out? Links to additional resources are provided.

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Organizational Resources

• American Association for Cancer Education (AACE)
  www.aaceonline.com
  The AACE fosters cancer education by individuals throughout the world who, either due to professional obligations or personal interest, are involved in cancer education. The association provides a forum for health-related professionals concerned with the study and improvement of cancer education at the undergraduate, graduate, continuing professional, and paraprofessional levels. Active members include physicians, dentists, nurses, health educators, social workers, occupational therapists, and other professionals interested in cancer education. Cancer education efforts are related to prevention, early detection, treatment, and rehabilitation.

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• American Cancer Society (ACS)
  www.cancer.org
  The American Cancer Society is dedicated to eliminating cancer as a major health problem by saving lives, diminishing suffering, and preventing cancer through research, education, advocacy, and service. Founded in 1913 and with national headquarters in Atlanta, the Society has 14 regional divisions and local offices in 3,400 communities, involving millions of volunteers across the United States.

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• ACS/ Clinical Trials: State Laws Regarding Insurance Coverage
  www.cancer.org/docroot/ETO/content/ETO_6_2x_
  State_Laws_Regarding_Clinical_Trials.asp
  Because of the difficulties that patients sometimes face with coverage for clinical trials, more and more states are passing legislation or bills that require health insurance companies to provide coverage for clinical trials. This page provides the most current information available regarding such legislation.

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• ACS/EmergingMed Clinical Trials Matching Service
  www.cancer.org/docroot/ETO/content/ETO_6_1X_
  Clinical_Trials_Matching_Service.asp
  This free Clinical Trial Matching and Referral Service is made available to American Cancer Society visitors through a collaboration with EmergingMed. Simply fill out one questionnaire and within seconds, you'll know if your profile matches any clinical trials in the system. The EmergingMed database contains more than 3,000 clinical trials for treatment, prevention, and early detection of cancer.

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• CancerCare
  www.cancercare.org
  CancerCare is a national non-profit organization that provides free professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. The site features resources for people with cancer and their caregivers (including counseling, educational programs, information and referrals, and financial needs resources), as well as cancer care professionals and members of the media. Users may choose between English- and Spanish-language site pages.

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• C-Change
  http://cchangetogether.org
  C-Change is comprised of the nation's key cancer leaders from government, business and nonprofit sectors. These cancer leaders share the vision of a future where cancer is prevented, detected early, and cured or managed successfully as a chronic illness. The mission of C-Change is to leverage the combined expertise and resources of its members to eliminate cancer as a (major) public health problem at the earliest possible time.

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• Coalition of National Cancer Cooperative Groups Inc. (CNCCG)
  http://cancertrialshelp.org
  The CNCCG is the nation's premiere network of cancer clinical trials specialists. Members include: cooperative groups; cancer centers; academic medical centers; community hospitals; physicians practices; and patient advocate groups. The Coalition offers a variety of programs and information for physicians, payers, patient advocate groups, and patients designed to improve the clinical trials process. Resources for patients include The Clinical Trial ABCs introductory guide, glossary of important terms, and questions to ask your doctor when considering a trial. Resources for health professionals include TrialCheck, an interactive tool for screening patients for cancer clinical trials. Other educational and support services also are available. Check out the informative and useful inserts that appeared in Newsweek during May 2001. Both "Cancer Clinical Trials: Are They Right for You?" and "Cancer Clinical Trials: Myth vs. Reality" can be downloaded, or reprints can be ordered online.

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• The Summit Series on Cancer Clinical Trials
  www.cancersummit.org
  The purpose of the Summit Series on Cancer Clinical Trials is to provide a platform for all stakeholders in the clinical cancer research enterprise to come together to express what each sees as positive and negative aspects in the existing system and to suggest ways in which it can be made better. The hope is that by building a more responsive and efficient system, trial enrollment will increase, permitting faster development of advances in cancer treatment, prevention, control, and symptom management. Read about sponsors, participating groups, and results, and find associated documents that include summaries of Summit meetings.

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• The Wellness Community
  www.thewellnesscommunity.org/
  The Wellness Community is a national non-profit organization dedicated to providing free emotional support, education and hope for people with cancer and their loved ones. The cornerstone of The Wellness Community is the “Patient Active Concept,” which encompasses the belief that patients who actively participate with their physicians and medical team in their fight for recovery can improve the quality of their lives and may enhance the possibility of their recovery. The site's Virtual Wellness Community offers cancer information, free, professionally moderated support groups in real-time for people with cancer and their caregivers (including teens), and a host of other resources for consumers and professionals. It also hosts physician and nurse lectures, nutritional workshops, mind-body programs, and other services. Both the site's resources and the online support groups are available in English and in Spanish.
  

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last updated: 02/03/08

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